Patient Story - Rick
Fifty-six-year-old Indianapolis-resident Rick has been suffering from chronic kidney
disease for many years. In late 1997, he was planning to get a transplant before he
needed to start dialysis, but a blood clot caused his kidneys to suddenly shut down,
and Rick needed to start dialysis right away.
For the first six months, Rick did in-center hemodialysis three days a week, which
was a draining, time-consuming process. Then he remembered hearing about a type of
home hemodialysis, which he was eager to try. So Rick and his wife decided to start
the six-week training program. One day, however, the water supply of his entire
neighborhood got contaminated and he couldn't continue with this treatment. Rick
then decided to try another form of home dialysis called peritoneal dialysis (PD).
Unfortunately, he developed a problem with his colon and had to have his peritoneal
dialysis catheter removed.
In 2004, Rick learned about an Indiana University study of a new portable home
hemodialysis machine. He decided to enroll and became the first patient in Indiana
to train on the NxStage System One, which he began in April of that year. "They
scheduled the training for 10 weeks," recalls Rick. "But everyone knew how to set
up the machine by the third day; it was pretty easy."
After the study was over, Rick continued to use the NxStage system and has been
on the therapy for more than six years, doing dialysis six days a week for about
two hours each day. Rick has been very pleased with the shorter, more frequent
treatments because they allow the dialysis machine to better mimic a real
functioning kidney. He feels much better with daily treatments and is particularly
happy with the lack of swings in fluid levels. He was able to stop all his blood
pressure medicines in the first week of starting on daily home hemodialysis and
has noticed an improvement in his appetite.
Before starting on the NxStage system, the rigorous schedule of Rick's dialysis
treatments used to keep him from enjoying vacations to places that didn't have a
dialysis center nearby to accommodate his needs. Since the NxStage System One is
small and very user-friendly, Rick is able to enjoy one of his favorite pastimes
again. Rick and his wife were finally able to take a cruise - doing his daily
treatments in their cabin after a full day's activities. They've also vacationed
at Hilton Head, S.C. and often spend a few days every couple of months in Georgia
visiting family.
"When I traveled on conventional hemodialysis, I had to call ahead and schedule a
treatment time in a center. They always give you a time in the middle of the day.
And, then you're so tired after your treatment that you don't feel like doing
anything. So, you lose three days of your vacation," he remembers. Now, Rick
can travel more easily to places he enjoys with his portable dialysis machine.
Rick is also thrilled to be back working part-time for a merchandising company
since he has more energy and doesn't feel sick after dialysis anymore. The
flexibility and freedom of this therapy also enables him to schedule his
treatments around his other activities, rather than having to conform to the
center's strict and often overbooked schedule.
Rick has tried practically every form of dialysis and feels that nothing
compares to daily home hemo with the NxStage system. Thanks to the many
health and quality of life benefits of the treatment, Rick has gotten his
life back now that he's able to work, travel and spend time with his family.
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