The Renal Revolution Blog
Earlier this week I had the pleasure of the spending the day with NxStage patient Henning. I knew Henning was special and had a great story to tell, so learning more about his will and determination on a personal level truly exceeded my expectations! Tuesday morning, a couple of us NxStagers packed our bags, gassed up the truck and headed north to visit Henning at his home in Northern New England.
Wow! What a great experience. We finished the day with a 62-mile ride and an energizing welcome by hundreds of spectators cheering us on to the finish; on day 3 of this 222-mile ride. It quickly became more than a typical bike ride, connecting with over 600 participants as we pedaled across the beautiful South Carolina countryside. It was truly a special experience to spend each afternoon with 3 NxStage® System OneTM patients as they dialyzed after each day’s ride.
Riding in the 220-mile Tour DaVita for the second time was like returning to summer camp. I looked forward to seeing the friends I made last year and what new friends I’d make this year. This year’s Tour DaVita was easier for me because I knew what to expect. There were so many events taking place in addition to the bike race, and I made sure not to miss out on anything.
Last week, I rode in my very first Tour DaVita bike ride. It was an incredible experience that you need to participate in to truly understand. Everyone was positive, smiling and sharing words of encouragement along the 220-mile bike route.
CMS asked for comments on the adequacy of home training payment in their most recent proposed rule, and the community responded – the first word that comes to mind is "wow!"
Call me an optimist. I think this will be the year CMS solves the home hemodialysis (HHD) training payment problem. On July 1, CMS issued its annual ESRD proposed rule (CMS-1526-P) for fiscal year 2014. In it, CMS asks for feedback on how they should solve the training payment problem. It demonstrates that CMS has heard our collective message and appears poised to address the primary problem that keeps awareness and access to the HHD treatment modality unacceptably low in the U.S. CMS’ focus on training payment in this year’s proposed rule demonstrates that they realize getting training payment right is the key.
Congressional Kidney Caucus Leaders Take Aim at Training Payments. NxStage is working aggressively to give more patients access to our life changing therapy. A key focus is changing Medicare's current payment policy for HHD training.
This morning, NxStage set another industry first, with one of our patients, Judy, dialyzing via live broadcast and talking to visitors in the booth. The portability and flexibility of the System One™ cycler was shown in spades -- no other home hemodialysis system could have allowed a patient to bring their machine with them to Seattle!
Medicare's dialysis payment policies discourage health care providers from offering a viable treatment option. More than 570,000 Americans are living with end-stage renal disease, the vast majority of whom are dependent on dialysis treatments to replace kidney function. For some of these patients, home hemodialysis is a viable treatment option that should be available.
A season’s greetings to all! I am very happy to take a moment to share a little with you about why this time of year is always a great one for me, especially this year. I have been a kidney patient since I was a child, and have experienced transplant, three-times-weekly in-center hemodialysis, and peritoneal dialysis. In January of this year, I started another treatment: more frequent home hemodialysis with NxStage.
Over the last few weeks, I have enjoyed participating in two National Kidney Foundation (NKF) Kidney Walks. On October 14, I – along with nearly 8,000 other walkers – attended the New York City (NYC) Kidney Walk starting at the South Street Seaport in Manhattan. What an amazing event!
Almost 15 years ago, I and a small team of talented and passionate people began creating the technology that provided the foundation for NxStage's growth. Together, we invented the System One - the only truly portable home hemodialysis machine cleared for home use by the FDA.
Earlier this week, I was excited to join dialyzers, care partners, physicians, nurses, and other renal professionals from across the country in Baltimore, MD for the Home Dialyzors United third annual conference and meetup. While we were there, we talked about the benefits of home hemodialysis and what members of the renal community can do to raise awareness and increase access to this amazing therapy.
Take a look at the just-published review, "How to Overcome Barriers and Establish a Successful Home HD Program" in the Clinical Journal of the American Society of Nephrology. I believe this marks the start of a turning point in how the nephrology community thinks about its obligation to endorse home hemodialysis and increase access.
This old adage is no truer or more fitting than for patients with end stage renal disease (ESRD) or kidney failure. At NxStage, we are committed to educating patients and the entire renal care community about the benefits of more frequent daily home hemodialysis—to give more patients access not only to our life changing therapy but also to the power of choice and engagement in their own health care. This is our mission.
"Three days of biking, wrapped by four nights camping in the hills of northern Iowa all to raise awareness about kidney disease…what’s not to love!" This September, I participated in Tour DaVita, an annual bike ride to create awareness about kidney disease. They call it the “Ride of a Lifetime,” and I can vouch for that.
I have been a nephrology nurse for almost my entire career in nursing - nearly 34 years. Most of that time has been in management, mentoring nurses, caring for patients, improving patient outcomes, and sharing my passion for nursing which extends to educating our patients and nurses today.
Not only have I had the good fortune to be married to a Nurse for 26 years, I have had the opportunity to work closely with outstanding Nurses my entire career. You are the hardest working, most ethical profession I know.
Today NxStage announced that we submitted public comments to the Centers for Medicare and Medicaid Services (CMS) regarding its Proposed Rule for the Changes to the End-Stage Renal Disease (ESRD) Prospective Payment System for 2013. NxStage’s comments call for CMS to correct the current insufficient and inequitable payments for home hemodialysis (HHD) training—making this life-changing modality more accessible to Medicare patients suffering from ESRD.
I’ve been in the renal industry for 17 years now (wow, does that age me?). I started out as a Customer Service Manager, where my team and I spoke with home dialysis patients on a daily basis. Those conversations are what made me passionate about renal care.
We are disappointed that CMS’ recently proposed rules again miss a clear opportunity to address home hemodialysis access for Medicare patients.
With June being the start of the Atlantic hurricane season, it’s a great time for all of us to think about what we’d do in the event of a weather or non-medical emergency.
The 49th ERA-EDTA (European Renal Association and European Dialysis and Transplant Association) Congress was held in Paris, France on May 24-27th. Over 8,500 delegates from the EU, Asia, US, Africa and Middle East attended this year's meeting.
Over 6500 critical care nurses from the USA and Canada gathered at the National Teaching Institute (NTI), the annual convention of the American Association of Critical Care Nurses, in Orlando, FL last week.
We are no longer debating whether or not we have enough clinical evidence to support more frequent, home hemodialysis, and we are no longer debating whether or not we have suitable technology to support patients choosing home hemodialysis.
Doing daily hemodialysis with the NxStage system was one of the greatest opportunities I’ve ever had the pleasure to take advantage of. It allowed me to continue with my normal life activities with very few problems.
This past weekend was an exciting few days at the 43rd ANNA National conference. Attendance was up from last year, with over a thousand attendees present in sunny Orlando. It’s always exciting to see and hear from so many passionate providers all working to improve the quality of renal care!
Thanks to the FREEDOM study, it's been known for some time that more frequent home hemodialysis is associated with improvements in depressive symptoms, as well as dramatically improved recovery times, and improvements in other key clinical measures.
On March 29, in Washington, DC, I and several other NxStage employees were pleased to support and participate in the first-ever National Summit on Home Dialysis. NxStage Scientific Advisory Board Member Allan Collins was one of the featured speakers.
For all of us interested in ensuring that more frequent home hemodialysis is accessible by the Medicare population, I urge you to read the recently released March MedPac Report to Congress.
Today marks the 7th annual World Kidney Day. This important – and growing – initiative was created to raise awareness of the importance of kidneys to our overall health. The goal is to reduce the frequency and impact of kidney disease and associated health problems worldwide.
Kimal Plc will be celebrating World Kidney Day, March 8th 2012, by setting up an informational stand at the Bromsgrove Manufacturing Site in the morning and the Droitwich, global logistics and main office site in the afternoon. The stand will be attended by Chris Scott (Clinical Nurse Specialist, Renal Team). Chris will be giving out World Kidney Day Leaflets regarding Transplant to raise awareness of the Kidney Donation Programme and testing Blood Pressure/Urine for a small donation of £1, to help promote the Kidney Health of Kimal Employees'.
Happy World Kidney Day! That’s right … I’m celebrating; not just the opportunity to share CKD awareness, but also the chance to be living well with a full life on dialysis. And I'm very excited to be the first patient submitting to this new "renal revolution" blog. Knowing NxStage as I do, I am sure I’m just the first of many who will share their story here.
The year’s event highlights the need for families to consider the importance of organ donation, particularly for families with young members aged between 18 and 29. One of the most important factors that helps the family’s decision is knowing the wishes of their loved ones.
Yesterday was another exciting day at ADC, especially if, like me, you love new stuff. I found two sessions particularly interesting. There was a lot of exciting technology news. It's great to be part of a company that's continuing to revolutionize home hemodialysis.
The 32nd Annual Dialysis Conference opened formally yesterday with a full day of posters, scientific sessions, and industry exhibits. A common theme, echoed in a number of presentations including the Keynote Address, was the need for more frequent, and/or longer duration, hemodialysis.
I’m very excited to post that just this month, UnitedHealthcare published a medical coverage policy update that provides payment for more frequent home hemodialysis.
Whether you’re a dialyzor, caregiver, nurse, doctor, public health official, politician, or simply in the healthcare or insurance industry – we’re glad you’re here. The goal of the blog is simple: To feed the revolution with real world insights and new ideas while nurturing conversation among a community that’s actually making a difference in people's lives and in the healthcare environment.