Turn to Respite Care When You Need It

If you’ve taken on the role of care partner for a friend or loved one on home hemodialysis, there will be times when you simply can’t show up. You may be sick, need to travel for work, take a vacation or have someone else in your life that needs immediate care.

Because of that it is important to understand what respite care options may be available. Everyone’s treatment schedule and routine is different, so talk to your friend or loved one’s care team for more information, in the event that you are not able to attend a session.

What Is Home Hemodialysis Respite Care?

Respite care may be an option for NxStage care partners that allow hemodialysis patients to continue their prescribed treatments in-center, for a short period of time, giving care partners the freedom to take care of other areas of your life that may need attention. Respite care is for short-term use but gives care partners time off, should they need it.

By taking advantage of this option, home hemodialysis patients using NxStage System One with a care partners may continue to treat at home, while experiencing the benefits that more frequent hemodialysis may provide.

Long-term options

Respite care is primarily a short-term solution to help with scheduling conflicts or in the event a care partner is unable to be present for a treatment. As a care partner, it is important to know that there are also longer-term solutions available that will allow your friend or loved one to continue their home hemodialysis treatments, in the event you can no longer be a care partner.

Home hemodialysis, as you may already know, is available in different therapy options (frequency, duration, etc.). What you may not know is that there is also an option for treating without a care partner, provided that a patient’s physician agrees that solo home hemodialysis is appropriate.

Patients who perform solo home hemodialysis do not have a care partner during their treatment, and are trained on what to do in the event of an emergency. Solo home hemodialysis allows patients to safely perform 100% of their treatments and select the schedule that works best for them.

Nocturnal home hemodialysis may be another option. Nocturnal home hemodialysis is different because both the care partner and the patient are asleep. It removes some of the burden of therapy by freeing up both your days for work or other obligations. Nocturnal home hemodialysis is a safe alternative and may help with scheduling conflicts or work hours.

For more information on the different types of therapy options available visit Developing a Care Plan and talk to your friend or loved one about their options.

 

Risks and Responsibilites

The reported benefits of home hemodialysis may not be experienced by all patients.

Despite the health benefits that more frequent home hemodialysis may provide to those with chronic kidney disease, this form of therapy is not for everyone. Please review this information carefully and discuss it with your doctor as you evaluate your therapy options.

Personal and Partner Responsibility
Home hemodialysis with NxStage during the day may not require a care partner, provided a physician and a trained and qualified patient agree that solo home hemodialysis is appropriate. Patients performing nocturnal treatments are still required to have a trained care partner. Care partners are trained on and follow system guidelines for proper operation. If you choose to do more frequent home hemodialysis, you will be responsible for complying with your dialysis prescription, which may require treatments up to six days per week. Each treatment can take about 2½ to 3 hours or more including set-up and tear-down. If you choose to do home hemodialysis alone during the day, you will need to take on the responsibility for tasks that would normally be taken care of by center staff when receiving treatment in-center. You will need to perform all aspects of the dialysis treatment from start to finish, including setting up the dialysis equipment, needle sticks, responding to and resolving all system alarms, and system tear-down at the end of treatment. In addition, you must monitor your blood pressure, ensure that proper aseptic technique is followed, and follow all of the training material and instructions given to you by your training nurses. You will also be trained on and need to know how to respond to any health emergencies that might happen during treatment at home, including dizziness, nausea, hypotension (low blood pressure), and fluid or blood leaks.

Similarly, for patients treating nocturnally, or who wish to have a trained care partner, you and your care partner will both be responsible for understanding and performing the above tasks.

Treatment Environment
To do home hemodialysis successfully, you must take care to ensure that you have a clean and safe environment for your treatments. You will also need to set aside space in your home for the needed supplies.

Risks Associated with All Forms of Hemodialysis
All forms of hemodialysis, including treatments performed in-center and at home, involve some risks. These may include high blood pressure, fluid overload, low blood pressure, heart-related issues, vascular access complications, cramps, backache, headache, dizziness, nausea, an “off” taste in the mouth, fatigue, fever, chills, joint pain, itching, seizures or sinusitis.

All hemodialysis therapies also involve the use of medical devices that introduce the potential for additional risks including air entering the bloodstream, damage of red blood cells, inflammatory reactions, blood chemistry imbalances, blood loss due to clotting of the blood tubing set or accidental blood line disconnection or other leak, allergic reactions, and excess warming or cooling of the dialysate. In addition, dialysis patients may have other underlying diseases that may, in some cases, make it more difficult for them to manage their hemodialysis treatments.

Risks associated with More Frequent Home Hemodialysis
Studies suggest that patients performing more frequent home hemodialysis may experience slightly fewer complications associated with their treatments, and actually may enjoy improved clinical outcomes. However, there are certain risks unique to treatment in the home environment. Treatments at home are done without the presence of medical personnel and on-site technical support. Patients and their care partners, if performing nocturnal treatments, must both be trained on what to do and how to get medical or technical help if needed. When vascular access is exposed to more frequent use, infection of the site, and other access related complications may also be potential risks.

With more frequent home hemodialysis, you are taking on a great deal of responsibility, but many NxStage patients feel that the benefits of this therapy are worth taking on these responsibilities. Thousands of patients are performing more frequent home hemodialysis with the NxStage System One and are enjoying the health benefits, improved quality of life, and additional freedom it can provide.

When performed correctly under the direction and with the support of your medical care team, more frequent home hemodialysis with NxStage may offer tremendous health and quality of life benefits. You should talk to your doctor to better understand the risks involved and how they might apply to you – and to determine if more frequent home hemodialysis is right for you.

Risks Associated with Solo Home Hemodialysis Therapy
A trained and qualified patient may dialyze alone, without a care partner present (solo home hemodialysis), provided the patient and physician agree that solo home hemodialysis is appropriate. Certain risks associated with hemodialysis treatment are increased when performing solo home hemodialysis because no one is present to help the patient respond to health emergencies. If patients experience needles coming out, blood loss, or very low blood pressure during solo home hemodialysis, they may lose consciousness or otherwise become impaired during any health emergency while alone could result in significant injury or death. Additional ancillary devices and training are required when performing solo home hemodialysis. Patients should consult their physician to understand the risks and responsibilities associated with solo home hemodialysis using the NxStage System One.

Increased Risks Associated with Home Nocturnal Hemodialysis Therapy
The NxStage System One may be used at night while the patient and care partner are sleeping. Certain risks associated with hemodialysis treatment are increased when performing nocturnal therapy due to the length of treatment time and because therapy is performed while the patient and care partner are sleeping. These risks include, but are not limited to, blood access disconnects and blood loss during sleep, blood clotting due to slower blood flow or increased treatment time or both, and delayed response to alarms when waking from sleep.

Treatment with nocturnal therapy may require adjustments to medications, including but not limited to iron, Erythropoiesis-Stimulating Agents (ESA), insulin/oral hypoglycemics, anticoagulants, and phosphate binders.

Patients should consult with their physician to understand the risks and responsibilities associated with home nocturnal hemodialysis using the NxStage System One.